Latest News

Dystonia Coalition: Advice and Accomplishments from 15 Years of Dystonia Research

Principal Investigator Hyder Jinnah, MD, PhD, shares advice and accomplishments from 15 years of dystonia research.

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National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

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Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

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Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Rare Research Report: December 2023

December 19 2023

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Rare Research Report: November 2023

November 14 2023

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Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Rare Research Report: September 2022

September 7 2022

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Patient Advocate Spotlight: Mark Rudolph Supports and Connects the Dystonia Community

May 17 2022

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Senior Researcher Spotlight: David Peterson Develops Innovative Technologies for Dystonia

May 10 2022

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