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Working to advance the pace of clinical and translational research in the dystonias to find better treatments.

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Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.

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NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

Dystonia Coalition: Advice and Accomplishments from 15 Years of Dystonia Research

Principal Investigator Hyder Jinnah, MD, PhD, shares advice and accomplishments from 15 years of dystonia research.

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The Dystonia Coalition 12th International Meeting—November 8, 2024

Dystonia Coalition announces the 12th International Meeting for junior faculty, fellows, and trainees on November 8, 2024.

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The Dystonia Coalition logo set against a gray background