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Working to advance the pace of clinical and translational research in the dystonias to find better treatments.

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Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.

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Dystonia Over Time: What We’re Learning from a Natural History Study

To learn more about dystonia, the Dystonia Coalition (DC) is conducting a natural history study, “Dystonia Coalition Projects-3 (DCP3): Natural History; Objective Measures; Biobank; Patient-Centered Outcomes.”

Dystonia Over Time: What We're Learning from a Natural History Study

2024 Dystonia Coalition Webinar

The Dystonia Coalition (DC) held a webinar in March of 2024 to provide updates on current projects and launch discussion on future plans.

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Rare Research Report: March 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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