Patient Advocacy Groups h1 >
The mission of BEAT DYSTONIA is to encourage and fund scientific research for advanced treatments and ultimately, a cure for dystonia; personally advocate for those living with dystonia and their families and finally, to tirelessly raise awareness about dystonia in mainstream worldwide media. Beat Dystonia operates with zero overhead.
Benign Essential Biepharospasm Research Foundation
Promotes the search for the cause, a cure, and treatments for benign essential blepharospasm and other related disorders and infirmities of the facial musculature.
Dysphonia International, formerly the National Spasmodic Dysphonia Association (NSDA), is dedicated to improving the lives of people affected by spasmodic dysphonia and related voice conditions by finding answers through research, building understanding through education and awareness, and raising hope through support for those living with these challenging vocal disorders.
Dystonia UK is the only national charity in the United Kingdom dedicated to helping people living with dystonia. They provide support for people with dystonia and their families through the publication of information and updates, influencing national policies and best practice, supporting research and development, and raising awareness of the little-known condition.