Skip to main content

Working to advance the pace of clinical and translational research in the dystonias to find better treatments.

A doctor explains a concept to a patient

Join One of Our Research Studies

Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.

Find a Study
Map pinpoint icon

See Our Clinical Sites

$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network

Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.

Group photo of approximately 50 DMCC members seated and standing in rows.

Rare Research Report: July 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for July 2025.

Rare Research Report logo

Pre-Doc Preparatory Program (P³) in Translational Research

Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and translational research?

Institute for Translational Medicine and Therapeutics logo