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A Previously-Funded NIH Rare Diseases Clinical Research Network Consortium

Latest News

NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

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Dystonia Coalition: Advice and Accomplishments from 15 Years of Dystonia Research

October 27 2025

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The Dystonia Coalition 12th International Meeting—November 8, 2024

September 4 2024

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2024 Dystonia Coalition Webinar

April 5 2024

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Patient Advocate Spotlight: Mark Rudolph Supports and Connects the Dystonia Community

May 17 2022

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Senior Researcher Spotlight: David Peterson Develops Innovative Technologies for Dystonia

May 10 2022

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Consortium Spotlight: Advancing Discoveries in the Dystonias

May 5 2022

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Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup

April 26 2022

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Characterizing Repetitive Behaviors in Phelan-McDermid Syndrome and More: RDCRN Research Roundup

April 12 2022

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The Dystonia Coalition (DC) is a previously funded research group of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). DC received funding under grant number U54NS116025 as a collaboration between NCATS and the National Institute of Neurological Disorders and Stroke (NINDS). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the DC administrative coordinating center at Emory University and does not necessarily represent the official views of the NIH.