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Rare Research Report: July 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for July 2025.

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Pre-Doc Preparatory Program (P³) in Translational Research

June 23 2025

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The Dystonia Coalition 12th International Meeting—November 8, 2024

September 4 2024

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Rare Research Report: July 2024

July 26 2024

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Dystonia Over Time: What We’re Learning from a Natural History Study

June 26 2024

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Dystonia Over Time: What We're Learning from a Natural History Study

2024 Dystonia Coalition Webinar

April 5 2024

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Rare Research Report: March 2024

March 22 2024

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National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

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Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

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Rare Disease Day at NIH. February 29, 2024. #RDDNIH.