Latest News

Rare Research Report: November 2023

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Rare Research Report: September 2022

September 7 2022

Patient Advocate Spotlight: Mark Rudolph Supports and Connects the Dystonia Community

May 17 2022

Senior Researcher Spotlight: David Peterson Develops Innovative Technologies for Dystonia

May 10 2022

Consortium Spotlight: Advancing Discoveries in the Dystonias

May 5 2022

Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup

April 26 2022

Two researchers in the lab looking at a tablet

Characterizing Repetitive Behaviors in Phelan-McDermid Syndrome and More: RDCRN Research Roundup

April 12 2022

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022