Skip to main content
Home
Member Login RDCRN Network Site

Header Social Media

  • Our Research
    • Diseases Studied
    • Research Studies
    • Clinical Sites
    • Research Publications
  • Patients and Families
    • Patient Advocacy Groups
  • Researchers and Clinicians
    • Resources for Researchers and Clinicians
    • Treatment Guidelines
    • Collaborate With Us
    • Funding Opportunities
  • Early Stage Investigators
    • Funding Opportunities
    • Pilot Project Program
    • Career Development Award
    • Previous Awards Recipients
  • News and Events
    • Latest News
    • Past Events
    • Upcoming Events
  • About Us
    • Our Consortium
    • Dystonia Coalition
    • Contact Us
An NIH-Funded Rare Diseases Clinical Research Network Consortium

Latest News

Training Program for Clinical Research in Rare Disease Launches New Session

The National Institutes of Health-funded R25 Rare Disease Clinical Research Training Program is launching a new training program for clinical research in rare disease. Now in its seventh year, this year-long, hybrid, free program is designed to support new investigators in the field of rare disease clinical research.

Read More
Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Rare Research Report: September 2022

September 7 2022

Read More
Rare Research Report logo

Patient Advocate Spotlight: Mark Rudolph Supports and Connects the Dystonia Community

May 17 2022

Read More
Headshot of Mark Rudolph

Senior Researcher Spotlight: David Peterson Develops Innovative Technologies for Dystonia

May 10 2022

Read More
Headshot of David Peterson, PhD

Consortium Spotlight: Advancing Discoveries in the Dystonias

May 5 2022

Read More
Dystonia Coalition logo

Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup

April 26 2022

Read More
Two researchers in the lab looking at a tablet

Characterizing Repetitive Behaviors in Phelan-McDermid Syndrome and More: RDCRN Research Roundup

April 12 2022

Read More
Scientist examining samples in the lab

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

Read More
Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo

RDCRN Research Roundup: March 2022

March 2 2022

Read More
RDCRN
  • Load More
Join our mail list
Recent Tweets

Footer menu

  • Web Policies
  • Rare Diseases Clinical Research Network
  • Genetic and Rare Diseases Information Center
  • Members Login
  • Contact Us

The Dystonia Coalition (DC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). DC is funded under grant number U54NS116025 as a collaboration between NCATS and the National Institute of Neurological Disorders and Stroke (NINDS). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the DC administrative coordinating center at Emory University and does not necessarily represent the official views of the NIH.

social media