Working to advance the pace of clinical and translational research in the dystonias to find better treatments.

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Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.
Find a StudyPre-Doc Preparatory Program (P³) in Translational Research
Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and t

The Dystonia Coalition 12th International Meeting—November 8, 2024
Dystonia Coalition announces the 12th International Meeting for junior faculty, fellows, and trainees on November 8, 2024.
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Rare Research Report: July 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
