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Working to advance the pace of clinical and translational research in the dystonias to find better treatments.

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Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.

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The Dystonia Coalition 12th International Meeting—November 8, 2024

Dystonia Coalition announces the 12th International Meeting for junior faculty, fellows, and trainees on November 8, 2024.

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Rare Research Report: July 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Dystonia Over Time: What We’re Learning from a Natural History Study

To learn more about dystonia, the Dystonia Coalition (DC) is conducting a natural history study, “Dystonia Coalition Projects-3 (DCP3): Natural History; Objective Measures; Biobank; Patient-Centered Outcomes.”

Dystonia Over Time: What We're Learning from a Natural History Study