Working to advance the pace of clinical and translational research in the dystonias to find better treatments.
 
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.
Find a StudyNIH Announces Funding to Establish and Strengthen Rare Disease Research Groups
The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).
 
                    Dystonia Coalition: Advice and Accomplishments from 15 Years of Dystonia Research
Principal Investigator Hyder Jinnah, MD, PhD, shares advice and accomplishments from 15 years of dystonia research.
 
                    $27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network
Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.
 
                     
            
     
               
     
     
    