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A Previously-Funded NIH Rare Diseases Clinical Research Network Consortium

Latest News

NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

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RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo

RDCRN Research Roundup: March 2022

March 2 2022

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RDCRN Research Roundup: December 2021

December 9 2021

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Research Roundup. #RareDiseasesSpotlight. Rare Diseases Clinical Research Network

RDCRN Research Roundup: November 2021

November 1 2021

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New Dystonia Coalition Funding Opportunities: Career Development and Pilot Projects Programs

March 23 2021

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Is it Tremor or Dystonia? New Research Aims for Better Understanding to Improve Diagnosis, Treatment

December 2 2020

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Dystonia Coalition Database Uncovers Characteristics of Upper Limb Dystonia

October 6 2020

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New Career Development Award Recipients and Pilot Studies Announced

October 25 2010

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The Dystonia Coalition (DC) is a previously funded research group of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). DC received funding under grant number U54NS116025 as a collaboration between NCATS and the National Institute of Neurological Disorders and Stroke (NINDS). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the DC administrative coordinating center at Emory University and does not necessarily represent the official views of the NIH.